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OII States Position On GID in the DSM-V Revision Print E-mail
SciMed - Neuroscience
OII Australia and OII Aotearoa New Zealand   
Wednesday, 05 August 2009 15:00

OII States Position On GID and the DSM-V Revision

American Psychiatric Association (APA) is currently working on a revision to The Manual for Diagnosis of Mental Disorders (DSM), the principal desktop diagnostic reference for psychiatric diagnosis. The APA has named the Work Groups and membership for the next revision, DSM-V. The APA stresses there will be a greater emphasis on evidence-based medicine.

The Organization Intersex International (OII) responded to the current activities on several different fronts. One of them consist of the following submission from OII Australia and OII Aotearoa New Zealand regarding the appropriateness of including Gender Identity Disorder (GID) in the DSM.

The Diagnostic and Statistical Manual of Mental Disorders (DSM) has undergone several revisions. The current edition (DSM-IV, Text Revision) is available on the the DSM-IV-TR web site.

The Diagnostic and Statistical Manual of Mental Disorders (DSM)


The DSM is a guide to what the American Psychiatric Association (APA) terms mental disorders. It is the handbook desktop reference used most often for diagnostics in the US and abroad.

The DSM contains a listing of psychiatric disorders, diagnostic codes, information on the prevalence of each disorder, and diagnostic criteria. The DSM is non-theoretical and does not offer information on causes or treatments.

Mental health professionals use the DSM for a variety of purposes, such as clinical practice, research, and educational purposes. Clinicians also use the DMS-IV to classify patients for billing purposes. The government and many insurance carriers require a specific diagnosis in order to approve payment for treatment.

The DSM has the force of law in a variety of mental health related activities, such as commitment hearings, and is a principal resource used in the development of legislation.

The DSM has gone though five major revisions, with the most recent major update published in 1994.

The current version is a minor variant published in July 2000 that adds clarifying text (DSM-IV, Text Revision). The primary goal was to maintain the currency of the DSM-IV text with the empirical literature up to 1992.

Most of the changes were in the descriptive text, with some error correction and changed diagnostic codes to reflect updates to the ICD-9-CM coding system adopted by the U.S. Government. It is available from the the DSM-IV-TR web site.

DSM-V publication is planned for 2010/11. The APA Steering Commitee says it is open to suggestions and maintains a web page, DSM-V: The Future Manual.

The Structured Clinical Interview for DSM-IV (SCID) Axis I Disorders (SCID-I) is a semi-structured interview for making the major DSM-IV Axis I diagnoses. The SCID-II is a semi-structured interview for making DSM-IV Axis II: Personality Disorder diagnoses.

The official SCID site maintains a list of Frequently Asked Questions (FAQs).
APA DSM-v Policy Initiative:
Gender Identity Disorder — In or Out?

Introducing OII

OII is the world's largest organization representing intersex people and their issues. It is wholly created and managed by intersex people on their own behalf. OII reaches out to its members in ten languages including Chinese (Mandarin) and Arabic.

OII is represented in Australasia by two independent affiliates: OII Australia and, in New Zealand by HBS-NZ.

OII International has appointed myself (Joanne M. Proctor (BA, LLB)) as the board member responsible for issues related to 'true' transsexualism, now becoming known as Harry Benjamin Syndrome.

Preamble

It has become common place to subsume biological diversity in sex formation under the umbrella terms 'gender diversity' and/or 'transgender'. The purpose of this submission is to explain the reasons why this practice is not appropriate when applied to intersexed and true (HBS) transsexualism.

1. HBS./ Transsexualism-Changing the Nomenclature

1.1 The newer name recognizes the contribution of American Endocrinologist, Dr. Harry Benjamin, who first described the syndrome thus:

"True transsexuals feel that they belong to the other sex, they want to be and function as members of the opposite sex, not only to appear as such. For them, their sex organs, the primary (testes) as well as the secondary (penis and others) are disgusting deformities..." (Ch. 2).

— Benjamin, Harry. The Transsexual Phenomenon.

1.2 True Transsexualism or Harry Benjamin Syndrome relates to individuals who experience a life-long conflict with their anatomical sex. The condition is characterized by early childhood sensations of wrongful embodiment and a powerful, often self destructive, discomfit with their reproductive function as adults. Early childhood manifestations of inappropriate 'gender role' behavior are not necessarily a component of this condition.

1.3 There is growing body of evidence that this syndrome is an intersex-like condition involving nuerobiological sex reversal in the human hypothalamus and possessed of a genetic component.

1.4 This new evidence does not support the prevailing theories that regard the condition as psychological and behavioral in origin. According to the current paradigm the syndrome is the result of mis-identification with the opposite sex, primarily caused by inappropriate gender role conditioning during the first two years after birth. The standard diagnosis of "Gender Identity Disorder" is based on that belief. (See "the sex-gender distinction," below.)

2. The legal frame-work

2.1 Australia in particular, is fortunate to have some direction from the full bench of the Family Court in this matter:

In Re Kevin (Validity of Marriage of Transsexual) [2001] FamCA 1074 (12 October 2001).

2.2 OII invites the APA to consider the case commentary, written by the plaintiff's solicitor, Rachael Wallbank. (Wallbank, R: [2004] Deakin Law Review. 22)

2.3 It is respectfully submitted that, for the reasons discussed below and to the extent that this condition is an identity issue at all, Ms. Wallbank's use of the term "sexual identity" is more appropriate than "gender identity" when dealing with the issue of true transsexualism or Harry Benjamin's Syndrome. (HBS). For the same reasons this terminology should also be used in cases of pediatric miss-assignments, where early surgical intervention is demonstrated to be inappropriate at adolescence or adulthood.

3. The Sex-Gender Distinction

3.1 To reiterate this difference, sex refers to the biological and physiological components of human sexual embodiment. Gender refers to the varied social and cultural expressions of maleness and femaleness. Thus sex is biological whilst gender is primarily the product of an individuals social environment, is largely learned, and is demonstrated or expressed by behaviors, mannerisms, dress, etc.

3.2 Recognition of the distinction is important. Gender expression is most commonly regarded as an exhibition or display of sexual or reproductive embodiment. In most cases the two are complimentary of each other. But that is demonstrably not always the case. Males can and do adopt feminine aspects of gender expression without being female embodied. The reverse is also true for females. When an individual adopts a gender expression and role that is considered socially appropriate to the opposite sex, he or she is said to be transgender. (Transiting gender.)

3.3 Some, though not all, transgender people make physical changes to their bodies to enhance their adopted gender role and expression. These physical modifications are not necessarily an indication of true transsexualism ( HBS), or any other form of biological variation.

3.4 OII supports and upholds the rights of all individuals, including intersexed and true (HBS) transsexuals, to adopt and express their sense of 'engenderment' by whatever manner best suits their personal needs.

3.5 OII has valid reasons for concern when concepts such as gender identity and gender expression are used as a basis for attempting to manage and control biological diversity, such as that found in the intersex conditions and true (HBS) transsexualism.

3.5.1 The theory that gender role conditioning in the early post-natal years can override any innate or genetic predisposition involved with predetermining the experience of individual sexual embodiment and function was discussed briefly in Paragraph 1.4 (above).

3.5.2 Many OII members have suffered substantial harm due to the clinical application of this belief. Since the late 1960's it has been common practice to surgically modify the genitals of infant's with so-called ambiguous genitalia and raise them as if they had born with the reconstructed organs. This has been done in the belief that they would self identify with the sex they were gender role conditioned into believing they belonged to. (Hence the terms 'gender identity' and 'gender assignment'.)

3.5.3 This deception is often compounded by the deliberate withholding of information on the birth status in the belief that the individual's 'gender identity' will be unstable if they are told the truth. Many intersexed individuals grow up experiencing similar sensations of physical incongruity and confusion to that experienced by true (HBS) transsexuals as a direct result of this practice.

4. Suggestions and Conclusions

4 -1 The practice of including Intersexed and True (HBS) transsexualism under the general rubric of gender diversity and/or 'transgender' is misleading and inappropriate.

4-1.2 Changing nomenclature in the case of true (HBS) transsexuals, to reflect recent neurobiological and genetic research is desirable and would assist in the development of better understanding among health professionals, educators and youth advisers such as school counselors etc. The changed nomenclature should reflect the fact that true or HBS transsexualism is first and foremost an embodiment issue, and secondarily a gender issue.

4-1.3 This approach would allow all professionals who come in contact with the syndrome to understand the profound distress that puberty causes to adolescent and pre-adolescent children with true (HBS) transsexualism, and who are either experiencing or approaching puberty. The danger of self harm at this time cannot be overstated.

4-1.4 The possibility that children and adolescents who exhibit signs of true (HBS) transsexualism began life with an intersex condition should not be eliminated without thorough investigation. This situation can easily occur where an infant has been subjected to pediatric gender assignment without their knowledge.

4-2 Legal frameworks should reflect the Australian decision in Re Kevin. Ms Wallbank's usage of sex rather than gender identity should be adopted, where appropriate, in legal documents to reflect the focus on the biological and embodiment issues rather than gender role expression and behavior.

4-2.1 To achieve this the APA should acknowledge the fact that almost all recent legal decisions involve usage of The DSM-iv(TR) and the WPATH Standards of Care. Neither of these resources accord meaningful recognition to the neurobiological components of human psychosexual development or to the experience of anatomical incongruity that is experienced by true (HBS) transsexuals, as well as many intersexed people following pediatric gender assignment.

4 -2.2 This lack of recognition results from a 'blanket' over reliance on a paradigm constructed in the mid-1950's, and which is demonstrably inapplicable to the experiences of many intersexed and true (HBS) transsexuals. The APA should recognize and take responsibility for the influence it exerts on evolving legal frameworks.

4-3 The sex-gender distinction needs to be clearly recognized and understood by all professionals. The failure to understand this distinction can readily lead to uncertainty or misdiagnoses by health professionals, inappropriate support delivery to individuals with true (HBS) transsexualism and the perpetuation of misconceptions into the wider community.

4-3.1 The APA, through the new DSM-v, can and must accept responsibility for ensuring beyond any doubt that these issues are not confused in future editions.

Conclusion

Whilst OII fully supports the rights of all people to adopt whatever mode of self expression best meets their personal needs, it is vital that clinicians and other professionals recognize that the degree and manner to which individuals express gender should always be a personal decision.

OII is fundamentally opposed to the proposition that gender can and should be used in an attempt to exert control or influence over intersexed embodiment and other biological diversity in sex formation.

Intersex and true (HBS) transsexualism can and should be excluded before any diagnosis predicated on gender behavior and expression is considered.

Other expressions of gender role behavior contradictory of birth sex are a matter for the APA and do not fall within the ambit of this submission.

Citations [C1] Source: Official Submission To DSM-v Rewrite. Organization Intersex International (OII); OII Australia and OII Aotearoa New Zealand. OII (1 August 2009).

[C2] TS-Si.org: OII States Position On GID in the DSM-V Revision. OII Australia and OII Aotearoa New Zealand. TS-Si.org (5 August 2009).

This work is licensed under a Creative Commons Attribution-No Derivative Works 3.0 Unported License. Copyright © 2009 Organization Intersex International (OII). Some rights reserved.
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TS-Si is dedicated to the acceptance, medical treatment, and legal protection of individuals correcting the misalignment of their brains and their anatomical sex, while supporting their transition into society as hormonally reconstituted and surgically corrected citizens.


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Last Updated on Wednesday, 05 August 2009 16:12