Comments for The Post-Op Experience: Our Own Best Subjects at http://ts-si.org , comment 1 to 6 out of 6 comments http://ts-si.org Tue, 02 Dec 2008 15:03:36 +0100 FeedCreator 1.7.3 http://ts-si.org/global-warning/3231-the-post-op-experience-our-own-best-subjects.html#comment-970 For many MtF increasing estrogen dosage increases libido, while addition of testosterone causes masculinization and anger but doesn't help with libido. Addition of real progesterone (Microgest, Prometrium, Utrogestan, Cyclogest) helps some others. Substitutes (progestins such as Provera) are much worse or not suitable at all. To mimic is not the goal, it's means. Poor means. The goals are to look as we want, feel good and live long. - Lena Wed, 13 Aug 2008 13:10:41 +0100 http://ts-si.org/global-warning/3231-the-post-op-experience-our-own-best-subjects.html#comment-968 I am 7 years Post-op and since I got SRS, every year my sexual desire went from not so bad after SRS (considering that the full drive for Testosterone was not there anymore) to completely nothing. My point is simple... Everything you have said in your colomn is totally true, but even if we are not a real natural women and that we are probably not even close to be like a post-menoposal natural woman (or hysterectomied women), we still share a common fact: Our sexual gonads (well, we don't have those anymore :o))don't produce any testosterone to a sufficiant level to generate sexual desire. Even the ovaries generate a good deal of Testosterone at a certain time in the cycle to stimulate the desire. I feel that from the moment we are starting the HRT we begin a war against T and I think it is wrong, the deal is not to kill it forever, the deal is to bring it to the level we need in order to keep one of its good side... sexual desire. Because without sexual desire, how can we really benefit from the overall change. Mind you, we are benefiting a lot without it, but with time for me at least, it is starts to be a heavy burden... Finaly, all of this to say that it is true that most doctors are clueless, that is true that we are our own patient but we need to rethink the way we propose HRT, it is not about going from one side to the other, it is about trying to mimic as much (in our own dynamic and physiology) as possible or natural sisters (ie: Ostrogen, Progesteron & Testosterone). Stefany - Stefany Tue, 12 Aug 2008 23:43:23 +0100 http://ts-si.org/global-warning/3231-the-post-op-experience-our-own-best-subjects.html#comment-923 Thank you for pointing out a missing attribution to the [url=http://health.groups.yahoo.com/group/CRONE_portal/]CRONE[/url] group. I am the Managing Editor and therefore responsible for the quality of our product. Please accept my apology for an uncharacteristic mistake. As you can see, we have corrected the error, edited the text to its proper format, and included explicit attribution to [url=http://health.groups.yahoo.com/group/CRONE_portal/]CRONE[/url]. Sharon - Sharon S. Gaughan Sun, 03 Aug 2008 12:36:08 +0100 http://ts-si.org/global-warning/3231-the-post-op-experience-our-own-best-subjects.html#comment-921 You could just mention that the 11 points and much of exact wording were taken from my messages to the [url=http://health.groups.yahoo.com/group/CRONE_portal/]Crone[/url] group. [url=http://lena.kiev.ua]Lena[/url] - Lena Sun, 03 Aug 2008 07:50:08 +0100 http://ts-si.org/global-warning/3231-the-post-op-experience-our-own-best-subjects.html#comment-778 My first experience was pre-op when my Doctor prescribed a really dose of Premarin along with Proscar (he said I had a benign enlarged prostate) and Spironolactone. On my next visit, I informed him that I wanted to switch to Estradiol and a higher dosage. It took some research and a letter, but I finally got him to prescribe 6 mg of Estradiol and 200 mg of Spironolactone, but to write the script for 8 mg of estradiol as I was going to lose my medical coverage due to divorce ( I didn't, in divorce coverage continues for 36 months) but I did up my estradiol intake to 8 mg taken sub-lingually over the course of the day. Post-op my new Doctor at first prescribed only 2 mg daily, however with my stock pile I went up to 4 mg; I finally persuaded her to perscribe 4 mg, but again, I'm taking 6 mg daily, I would also like to get her to prescribe Progesterone, but get the lame excuse, " that's only to protect the uterous"; but I know from experince it also promotes breast growth and a feeling of well being. I'm going to keep nagging or I'll continue to purchase it over the internet. It is truly amazing how ignorant Doctors are of the needs of a post-op HBS woman; I am going to cut out the blood tests as useless indicators of anything, my chloresterol has been in great shape with an excellent ratio and I see no reason for it to change, I take all my estradiol sub-lingually ( growing up in a military family and a 21 month sojourn in the army taught me to hate needles) and I go by what my body tells me is right-- Would you believe that in the 4 1/2 years since my SRS with yearly physical exams not even ONE doctor has checked my prostate, not that I'm worried, but I just think its rather funny. Pamela - Pamela Fri, 30 May 2008 22:08:53 +0100 http://ts-si.org/global-warning/3231-the-post-op-experience-our-own-best-subjects.html#comment-777 I agree that we are our own best subjects. Indeed, that sometimes is true even in fields where there has been more research. For example, I almost died a few days post-SRS due to a vaginal bleed that I now am pretty confident was related to an adverse reaction to Celebrex. Research suggests that my reaction was very rare. But somebody gets to be the rare one. I now hasten to mention the allergy whenever I seek treatment. Hence, not all of us are in the bell curve on everything. This, together the absence of any decent studies on HBS treatments, may mean that some of the generalizations you mention as to preferred treatments may not be the best for all of us. So far I am sticking to what has proven to work for me safely (knock on wood) re post-op HRT even though it varies somewhat from your recommendations (which I take to represent the prevailing view). To each her own. I don't mean this as a criticism, just an another point of view. - Diana Fri, 30 May 2008 13:07:47 +0100